He Cured His Own Disease; Reader’s Digest, May 2020

We Announced the $48.3M Federal Partnership at the White House! It was incredibly special for me to speak at the White House on Wednesday about our funding from the federal government and what it will mean for patients like me. While on stage, I couldn’t help but think back to 14 years ago when I…

As I’ve shared before, repurposing existing drugs to treat COVID19 (and every other disease) is our best opportunity to save lives as quickly as possible. One drug that is being repurposed and has gotten a lot of attention is tocilizumab (Actemra). As I shared in #ChasingMyCure (excerpt below), it was originally developed by my friend…

Our family grew! We welcomed our second little one into the world On November 5, 2021, we welcomed baby David into the world. He is the sweetest little brother to Amelia. It feels like such a dream to have this incredible family when I think back to when I was on my deathbed 13 years…

I am beyond honored to be named the 2023 Philadelphia Citizen of the Year by The Philadelphia Citizen. This recognition is a testament to our amazing team’s work and the support that so many of you have shared with us! It has been the honor of a lifetime to work with our amazing teams at…

Wow, my head is spinning from these recent clinical trial results. Within minutes of one another, two conflicting studies were released. The first I’ll highlight is of tocilizumab (the drug that my friend and colleague Kazu Yoshizaki developed to treat Castleman disease and tested on himself to prove that it was safe before giving it…

You’ve probably seen the term “cytokine storm” in the news a lot recently. That’s because COVID19 is able to unleash a cytokine storm in the most sick cases. As someone who has survived 5 deadly COVID19-like cytokine storms due to idiopathic multicentric Castleman disease and who studies cytokine storms in my lab, I thought I’d…